Enhancing dialogue between healthcare providers and people living with RA
DOWNLOAD CHANGING THE RA NARRATIVE STATEMENT OF NEED
- Explore healthcare provider and patient perspectives on steps to help improve patient management of RA
CONSIDER A DIFFERENT PERSPECTIVE
"When I try to determine if my patients are settling, I look for the dichotomy between the patient global assessment and the physician global assessment. This is a frequent tip off to the fact that the patient may be settling. If I assess a patient with active disease and the patient says that "they’re fine and they’re happy with where they are," that’s a suggestion that they may be settling. It is a prompt to ask additional questions and to probe further, to not take "I'm fine" at face value."
-Allan Gibofsky, MD, Rheumatologist (USA)
"There is immense value to setting goals with your patient at initiation of the relationship and regularly thereafter. These goals may create a meaningful result to the patient, but also outline an objective endpoint that you can both work towards. In addition to making the disease management process less nebulous to your patient, setting goals together involves the patient in working towards a common goal. These goals also provide a safeguard towards patient settling, since they force the patient to continually evaluate their progress and make the determination whether their current management plan is working for them." - Ara Dikranian, MD, Rheumatologist (USA)
“Although patients with RA can't be in control of everything, there are small changes that can make a big difference in the ownership over their disease. Being prepared for their health visit, and asking the right questions can be very important step to gaining more control. When a patient prepares to go into tha examination room or clinic appointment, they shouldn’t enter without preparation. That would be akin to going to the shop and having no idea of what you're going to buy. You're going to end up buying the wrong thing; so always make sure to go prepared. Think about it before you get there and ask "what do I want to get out of this visit?" Tools like the RA NarRAtive conversation guide are great resources to build prepared patients that are ready to ask the questions and discuss the issues that are important to them."
- Clare Jacklin, Patient Advocate, (UK)
"I am heavily reliant on our patient advocacy support networks in the UK. Every patient that I diagnose, almost without fail, I will direct towards a patient advocacy group for support. As a patient continues to live with their disease, they will inevitably have questions to which I don’t have the answers. Patient advocacy support groups are perfect for these situations. These groups allow people living with RA to connect with others who have shared their exact same experiences. The importance of these groups cannot be understated and should be intertwined with any rheumatology practice."
- James Galloway, MD, Rheumatologist (UK)