Patient and Caregiver Peer Coaching Intervention to Improve Patient Care and Shared Decision-Making Between Patients with Inflammatory Bowel Disease and Their Health Care Team
Almost 25% of all new diagnoses of Inflammatory Bowel Disease (IBD) are made in childhood or adolescence, and the incidence rate continues to increase, which, accompanied by greater complexity and severity of the disease, have contributed to more young adults with IBD requiring care in adult gastroenterology settings (1, 2). Successfully addressing adaptive challenges, such as adhering to complex medication regimens and learning to navigate the adult health system is fundamental during this transitional phase into young adulthood. However, young adults often lack the skills of self-management and independent healthcare navigation to adequately communicate with their providers about their symptoms and their related life and health concerns. Interventions are needed for young adults with IBD to develop skills and knowledge to increase their adaptive capacity for navigating the process of shared decision-making with their healthcare team. A peer-based coaching intervention for young adults with IBD is a novel approach that utilizes an established telephone/text based secure interface to allow young adults with IBD to access the knowledge, experience, and instrumental and emotional guidance from a trained peer coach with the shared experience of living with IBD. The purpose of this study is to examine the feasibility, acceptability, and effectiveness of a peer health coaching intervention for young adults with IBD. This study will lead to further refinement and multisite testing of this intervention, which has the potential to be deployed across a range of settings to promote the development of shared decision-making and self-management skills among young adults with IBD.
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