Congratulations to Our Awardees

Pfizer is proud to recognize the organizations selected for this cycle’s SCALE Grants. These awardees have shown outstanding leadership and strategic vision in helping address critical gaps in care, strengthen community health infrastructure, and scale evidence‑based policy interventions. Awardees include:

Data Collection/Surveillance

• As One Foundation
  SCALE AS ONE Voice Pilot Project
  This project helps ensure that community perspectives guide both the launch and long‑term effectiveness of Texas’ first sickle cell registry (created under House Bill 107). By strengthening education, enrollment preparedness, and trust, it tests scalable approaches for community engagement, culturally relevant communication, and policy‑driven feedback mechanisms.
   
• Loma Linda University
  Harnessing Geospatial Mapping to Inform Policy and Overcome Access Barriers to Sickle Cell Centers of Excellence in Southern California
  The project uses geospatial analytics to map where people with sickle cell disease (SCD) live in Southern California relative to NASCC Centers of Excellence and affiliated clinics, identifying care gaps and access barriers such as travel time and socioeconomic factors. The findings will be translated into an advocacy-focused report and policy brief to inform decision makers and establish a scalable health policy model nationwide.
   
• NY Health & Hospitals
  NYC H+ H SCD CARE Connection
  This pilot is an innovative initiative in New York State to formally test an integrated Community Health Worker–Health Home case management model for people living with sickle cell disease. By evaluating clinical outcomes, care coordination gaps, and financial impact, the project will generate actionable evidence to support Medicaid reimbursement reform, inform implementation of the Sickle Cell Disease Comprehensive Care Act, and advance recognition of SCD as a single-qualifying condition for Health Homes—providing a policy-ready model for statewide and national adoption.

Assessment & Analysis

• Bridges Point Inc.
  Community Assessment for Resources and Empowerment (CARE) Initiative
  The CARE Initiative is a patient‑led project designed to help capture community‑driven qualitative data on how social and structural factors—such as transportation barriers, stigma, housing instability, and food insecurity—affect access to sickle cell care. Through a short survey and town‑hall‑style focus groups, the project documents the real‑world experiences of patients and caregivers and supplements statewide surveillance efforts.
   
• Sickle Cell Medical Advocacy Inc.
  The Sickle Cell Healthcare Navigator–Patient Assistance Initiative
  The pilot accelerator program helps address gaps in emergency care, specifically the failure to treat patients classified as Emergency Severity Index (ESI) level two within the recommended one-hour timeframe. The project will analyze whether patients receive timely treatment and examine how care delays affect patient-reported pain control. By translating real-world patient experiences into actionable evidence, the program aims to support policy change through advocacy tools and policy briefs.

Policy & Advocacy

• CA Sickle Cell Disease Foundation
  From Lived Experience to Legislative Impact: The SC Crew Policy Training Initiative
  This pilot accelerator project empowers transition-aged youth (16–24) with sickle cell disease to become self-advocates and policy changemakers through a structured advocacy and policy training integrated into the SC Crew initiative. Participants will learn legislative processes, policymaker communication, and data-driven storytelling, culminating in a coordinated state legislative visit. The program amplifies underrepresented voices and addresses healthcare transition gaps by equipping youth to advocate for systems-level improvements in sickle cell care.
   
• Sickle Cell Consortium
  Leadership in Education, Advocacy, and Policy (L.E.A.P.)
  LEAP is a multi-week hybrid training program that equips participants to turn lived experience with sickle cell disease into effective policy advocacy. The program focuses on identifying gaps in care, understanding legislative and regulatory processes, strengthening the advocacy capacity of sickle cell community-based organizations, and developing a Sickle Cell Advocacy & Policy Playbook to support long-term, community-driven policy change nationwide.